After Diagnosis

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Overview

For some people receiving a diagnosis is a relief. Naming the symptoms and ending the uncertainty can feel validating. For others, receiving a diagnosis can cause sadness and feelings of grief and loss. There is no “right” way to handle the news, but these tips may help you and your loved ones feel more certain about your next steps. To make it easier to have this information on hand, we have created a Self-Advocacy Guide, which you can download below.

Helpful Tips

Allow time to adjust: Give yourself grace during this time. Try not to deny your feelings. Make a plan to communicate the diagnosis to friends and family, especially those who can offer support and serve on your care team.
Set up a routine: Having a clear routine can help alleviate the tension and avoid stress for you and your loved one. In case of an emergency, prepare a wallet-sized list with emergency contacts and medical information about your loved one
Professional guidance: Reach out to a professional to help guide and provide support for you and your loved one through this transitional time. Find support from friends who understand. Support groups can help you problem solve with other who have experienced what you are experiencing